I

stared at the pages in my hands froze for a moment and then turned and ran to my room holding tight to that precious bundle. It was a day like any other but in that one innocent moment everything changed.

“Shira come here.” I’d followed my mother’s voice to the study where she stood holding a yellow folder. “Here read these. I’ve been reading them for you these past few years.” I’d peeked inside and then made a beeline for my bedroom locking the door behind me.

I took out the first magazine. What was this exactly? I was confused as I looked at the front cover with a cute picture of a giraffe and the name: Marfan Magazine. I opened it.

Page one. Staring up at me were pictures of people who looked disturbingly similar to me.