How did I know I really had Marfan’s? Could it be I didn’t even own the suitcase of stuff I’d been carrying around with me?
A
s I processed my childhood, I hit on one big question: How did I know I definitely had Marfan’s?
I e-mailed my childhood doctor to ask: “We diagnosed you based on your symptoms, but we did not have a test available at the time to confirm that this was 100 percent correct,” the doctor e-mailed back. Whoa. Wait.
Could it be that I didn’t even own the suitcase of stuff I’d been carrying around with me?
With my new computer, and even more recent access to the internet, I began googling. There were so many facts available online about Marfan’s. I never knew that the high roof of my mouth was why I found it hard to speak clearly. As I looked at more pictures, I saw some very tall and extremely thin people. If I did have this thing, I definitely got it easier than some people, I realized.
