A Precious Prayer   

But they weren’t a cure. I was barely three decades into my life, faced with the prospect that I would spend the rest of it dancing on the tightrope-thin line between life and death.

Those first few months were brutal. I didn’t see how life could continue.

Two years later, baruch Hashem, I’m doing much better than we’d thought possible on that nightmarish day the doctors first sat us down. We’ve managed to keep our children’s lives stable and wholesome. Aside from three short-lived scares, I look outwardly healthy. We have a warm, loving home filled with lots of laughter and happy moments, and we’ve celebrated beautiful simchahs.

But it’s also been two years of long and difficult bimonthly treatments that come with many side effects. Two years of endless medical appointments, constant meetings with a rotation of 12 different specialists, and tests and more tests and imaging to track the disease’s progression.