My parents didn’t know what to think because the doctors insisted there was nothing wrong with me
Adrenaline rushes.
Asthma. Blood pooling. Blurred vision. Brain fog. Chest pain. Convulsive syncope. Costocondritis. Dizziness. Excessive sweating. Insomnia. Joint pain. Migraines. Muscle spasms. Nausea. Shaking. Stomach pain. Tachycardia. Temperature dysregulation. Vocal chord dysfunction.
I’m a 20-year-old girl, and the above is a partial list of the symptoms I experience regularly. My official diagnosis is hypermobile Ehlers–Danlos syndrome (hEDS) and postural orthostatic tachycardia syndrome (POTS). Having EDS basically means that my body’s connective tissue is faulty, and considering that connective tissue makes up something like 80 percent of the body, a problem in the connective tissue can cause anything from loose joints to extreme fatigue to rapid bruising. POTS is a disorder of the autonomic nervous system that causes problems with blood circulation. The form I suffer from causes my body to go into fight-or-flight mode at random, resulting in racing heart rate, light-headedness, brain fog, blurred vision, and extreme exhaustion.
Most people have never even heard of these conditions. And many doctors are not equipped to diagnose them.
I know, because my symptoms went undiagnosed for many years.
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